Corey Chambers Real Estate Newsletter December 2025 — The California Home

The California Home
Corey Chambers ‘Giving Back and Paying It Forward’ Real Estate Newsletter — The California Home

Unfortunately, many homeowners feel the bind of being ready to enjoy the holiday but trapped with a big task. They are desperate to exit their current loft, condo or house and give themselves a big Christmas Gift – a NEW place to call home.

Here’s how you and I can help. As a result of my team’s work with over 5,000 families over 20 years and three recessions, we have developed a unique program to quickly get an acceptable “cash” offer on any home for market value. So we are giving Home Owners wanting to make a move an extraordinary gift this holiday season. For December, we will guarantee, in writing, the sale of an area home in 30 days at a price acceptable to the homeowner. In the event there is no sale, we’ll pay the homeowner $5,000. The homeowner and I need to agree on the price. We do that starting with a simple, FREE consultation.

Here is what you can do to help!

If anyone you know, including yourself, is considering making a move, we would like to offer them a FREE, No Obligation to Sell for Top Dollar Consultation. On this call, we’ll discuss just how they can make their move, get what they want, and do it with the least hassle.

AND while we are on the phone, I will instantly send over a FREE Special Report titled “Costly Home Seller Mistakes to Avoid When Selling During the Holiday Season.” Just like we are thankful for you and your business, I am confident your referrals will be thanking you for steering them in the right direction on getting their home sold!!!

*A GREAT Guarantee: Sold in 30 Days, or I pay a $5,000.00 Cash Penalty!

*A FREE Consultation to Discuss What Price Can Be Expected.

*A FREE Special Report that details Mistakes to Avoid When Selling in Today’s Market.

AND remember, YOUR referrals help the Kids!

We are still on a mission to raise $25,000 for Children’s Hospital of Los Angeles CHLA, so we donate a good portion of our income from home sales. As you know, CHLA does a tremendous job of helping kids fight through and survive heart transplants: stuff that many times rob the life right out of young people.

Attached is a story of one child’s life being saved. CHLA survives on Sponsorships and Donations. 

So YOUR REFERRALS REALLY DO HELP THE KIDS!

Who do you know considering buying or selling a home you could refer to my real estate sales team?

Not only will they benefit from our award-winning service, but we donate a portion of our income on every home sale to Children’s Hospital right here in Los Angeles.  Your Referrals Really Do Help the Kids…

I want to make it easy to refer your friends, neighbors, associates, or family members considering making a move, so here are your options:

1. You can go to entar.com/refer and enter their contact info on line or forward the link to who you know considering a move.

2. Of course, you can always call me direct as well at 213-880-9910.

Corey Chambers, Broker DRE#01889449 #referralshelpkids #entarlovesyou

Who do you know considering buying or selling a home you could refer to my real estate sales team?  Not only will they benefit from our award-winning service, but you can rest assured a very worthy group of children will benefit as well! 

To refer your friends, neighbors, associates, or family members considering making a move, just give me a call or pass on my number to them! 

In my career of helping families sell their homes and/or buy another, we have met some wonderful, loving, caring friends. People like you! So for those you know that are considering a move, you have my word that we will do our very best in helping them buy or sell the place they call home. 

I hope this special month of Showing Thanks brings you much joy and happiness. With all my appreciation,

Corey Chambers, Broker |  ⭐⭐⭐⭐⭐ DRE#01889449
Powered by Entar® Real Estate & Investment Technologies

P.S. We love honoring our past clients like you. Read all about that at: www.ReferralsHelpKids.com

I have attached an article that demonstrates the great work done by CHLA and how your referrals really do help the kids right here in Los Angeles. Keep em coming!

Corey

Why I Support Children’s Hospital Los Angeles

I grew up right here in the Los Angeles area. Born at St. Francis Hospital. When I first heard about a young person close to our family suffering from a life-threatening disease and getting treated for that at Children’s Hospital Los Angeles. It was then that I began to pay more immediate attention to their work at that hospital. Since then, I have learned that it is a collection of hard-working health care professionals, most making their home right here in the Los Angeles area, all coming together for a common cause. That cause is to help young people overcome unfortunate health issues that life sometimes throws our way.

Being in the Los Angeles area, a California native, I take pride in supporting so that I can do the good work these people do at Children’s. My team rallies around our annual goal of raising money and donating portions of our income to help Children’s in their quest to heal young people when they need healing. My team and I are committed to providing outstanding results for buyers and sellers referred to us by our past clients. I have discovered that Children’s Hospital Los Angeles shares similar commitments to their patients. And since their services survive on sponsorships and donations, we are happy to contribute and proud to support them. 

Over the years our team has helped our friends, family, clients to buy, sell or lease a home, we have met some wonderful, loving, caring people. 

People like you!

So your referrals can be assured that not only will they get the award-winning service we are known for but also the guarantee to back it up, but that a solid portion of the income we receive will go toward a very worthy cause. 

CHLA Epilepsy Specialists Help Narek Say Goodbye to Seizures and Return to What He Loves

Narek was experiencing five or more epileptic seizures every day. After posterior quadrant disconnection surgery at CHLA, he now celebrates one year of being seizure free.

When he’s not at school or playing soccer or basketball, 11-year-old Narek loves to draw. “I draw lots of things, like dragons, dinosaurs, flowers, cake, and funny faces,” Narek says.

Meeting Narek today, it’s hard to believe that not long ago, his epilepsy frequently kept him from enjoying his favorite activities. “When he was first born, everything was normal,” says Arman, Narek’s dad. “We were discharged from the hospital, we went home, and that night his skin turned blue.”

Arman and his wife, Yepraksya, quickly brought Narek back to the hospital in their hometown of Glendale, California. They were soon transferred to Children’s Hospital Los Angeles, where magnetic resonance imaging (MRI) revealed that Narek had had a hypoglycemic brain injury, an issue similar to a stroke in which low blood sugar causes energy failure and damage to cells in different areas of the brain.

Soon after, Narek started having seizures, which were initially treated by medication. But by the time Narek was 8 years old, his epilepsy no longer responded to medications. He was having as many as five seizures a day and needed to wear a helmet due to frequent falling.

Through advanced imaging, specialists in CHLA’s Comprehensive Epilepsy Center were able to pinpoint the area of Narek’s brain responsible for the majority of his seizures. After a specialized surgery, Narek has been seizure free for over a year.

“It’s been so good,” Arman says. “There is no fear that Narek is going to have a seizure anymore. He’s able to do so much now and its just been such a positive change for him.”

Narek’s early experiences with seizures

Six months after his initial brain injury diagnosis as a baby, Narek’s brain activity went back to normal. He was weaned off meds and stayed seizure-free for several years.

Then, at age 4, the seizures came back. His care team tried several first-line medications, but the seizures gradually became more frequent. By the time he was 8 years old, Narek’s condition was worse than ever.

“He was having seizures every day,” Arman explains. They were referred to Madeline Kahan, MD, at CHLA’s Comprehensive Epilepsy Center.

“I first met Narek and his parents in February of 2023,” Dr. Kahan explains. “When I met him, Narek was already on several anti-seizure medications and was having five or more seizures every day. But still he was outgoing and such a joy to be around, and his family was so lovely and gracious.”

At this point, Narek’s epilepsy had become “intractable,” meaning that two or more medications were failing to stop his seizures. For an individual in this situation, there is only a 3% chance that any other anti-seizure medication will work. It was time to start exploring other treatment options for Narek, which would require extensive testing of Narek’s brain using a variety of imaging technologies.

“That was, to be honest, a big relief for us that there could be another option besides medication,” Arman says. “And so we began about a year and a half of testing.”

Cutting edge tests highlight new treatment options

Fortunately, as a Level 4 Epilepsy Center, CHLA has the highly specialized expertise and technology needed for these tests. “Without access to the detailed evaluations that we have at our disposal, Narek may not have had the outcome that he ended up having,” Dr. Kahan explains.

Dr. Kahan, along with the entire team at the Comprehensive Epilepsy Center, used high resolution magnetic resonance imaging (MRI), with advanced imaging techniques involving epilepsy protocols, positron emission tomography (PET), magnetoencephalography (MEG), extended electroencephalogram (EEG), and detailed neuropsychological analysis to begin determining the optimal treatment plan.

Throughout this evaluation process, Dr. Kahan would share the various test results with the entire CHLA epilepsy team, including epileptologists, surgeons, neuroradiologists, and neuropsychologists, to help interpret the images and determine next steps.

Virendra R. Desai, MD, the Surgical Director of the Comprehensive Epilepsy Center, became a key part of Narek’s care as well. “In the event that all these specialized diagnostic tests show that seizures are starting in one specific part of the brain, a surgical solution is clear,” Dr. Desai explains. For Dr. Desai, Narek’s EEGs were particularly important, as they record the brain’s electrical activity and can help to pinpoint the part of the brain where the electrical signals responsible for seizures start.

But for Narek, these tests further revealed the complexity of his epilepsy. The electrical signals that caused his seizures appeared to be coming from different parts of the brain, a slightly less common occurrence than seizures originating in one place. Further testing and more detailed information would be needed to develop a treatment plan.

To get a more precise read of the brain signals, Dr. Desai suggested a different type of EEG called a stereo EEG or sEEG. Instead of attaching electrodes to Narek’s head, this process would involve making an incision and, in Narek’s case, temporarily placing nearly 200 electrodes on the surface of the brain itself. “Typical EEGs have the limitation of having to detect brain waves through a patient’s skin and skull,” Dr. Desai says. “This severely impacts the ability to identify where seizures are coming from. Narek thus underwent an invasive EEG, where electrodes are placed underneath the skin and bone, which is far better at identifying what we call the ‘bad brain.’ This technique has about 100 times better resolution than a standard EEG.”

This new EEG gave the doctors the information they needed, leading to further conferences with the full epilepsy team. “We found out that 80% of Narek’s seizures were coming from the right side of his brain, and the other 20% were coming from the left side,” Dr. Desai says. This was a complicated discovery, as it didn’t necessarily point to a simple solution.

In a procedure called a posterior quadrant disconnection, doctors could surgically disconnect the portion of the brain responsible for the majority of Narek’s seizures, but the few seizures that started in the other side of his brain might still occur. Side effects that can result from the surgery include changes in memory, vision, and awareness of certain body parts and movements. This procedure was one among several potential courses of action.

“We laid out all options for the family, from the least invasive option to the most invasive, making sure that this was a collaborative decision that involved the family at every point,” Dr. Kahan says.

The options included vagus nerve stimulation (VNS), which was minimally invasive but unlikely to reduce Narek’s seizures as significantly as other more targeted options. Another choice, responsive neurostimulation (RNS), could be helpful at reducing seizure frequency and was a strong option. But the method which the doctors believed would have the best chance of success was to perform the posterior quadrant disconnection surgery to permanently remove the source of most of Narek’s seizures, and if any seizures continued, to implant an RNS device to minimize those.

Moving forward with trust

Understandably, this was a big decision for Narek’s family. “We had some time to think about what we wanted to do, and it was stressful,” Arman says. But Narek’s seizures had become serious enough that his parents were homeschooling him because it wasn’t safe for him to be at school on his own.

Narek and his family decided to move forward with posterior quadrant disconnection surgery near the end of November 2024. “We felt good deciding to do the surgery because of the confidence of the doctors, and because of the trust we had in them,” says Yepraksya, Narek’s mom.

The surgery, also called posterior quadrantectomy, took nearly 6 hours. Dr. Desai carefully removed a portion of the temporal lobe on the right side of Narek’s brain, where most of the seizures originated, and disconnected his ‘bad brain’ from the rest of the brain. Afterward, Narek and his family stayed at CHLA for two weeks of rehabilitation, then returned home.

Since the surgery can have an effect on physical movements such as walking and speaking, Narek attended physical therapy at CHLA until his movements were back to normal, and occupational therapy once a week to help ensure his speech was clear.

We felt good deciding to do the surgery because of the confidence of the doctors, and because of the trust we had in them. — Yepraksya, Narek’s mom

A year of zero seizures

Following the surgery and recovery in November 2024, Narek had just two seizures through the month of December.

And then, they stopped completely.

Now, Narek has been completely seizure free for nearly a year. He has not had to have the RNS device implanted, he has been weaned off two of his five anti-seizure medications, and Dr. Kahan hopes to gradually remove the other three medications soon. Arman describes the family’s immense relief: “Everything’s just so much better because Narek can go everywhere now with ease,” Arman says. “He’s much more active and less tired than before.”

Narek has also been able to return to school for 6th grade. “Now he has a routine,” Arman explains. “He goes to school from 8 to 2:30, has a chance to socialize with the kids there, and then comes home and spends time with his two younger siblings. It’s like life has been normalized again.”

Narek was especially thrilled to resume drawing pictures and playing his favorite sports. “On the weekends, I play soccer and tennis now,” he says with a smile.

The family now checks in with Dr. Kahan every three to six months just to ensure that Narek is progressing well. In Spring 2025, they even attended a CHLA-organized epilepsy symposium at the Kidspace Children’s Museum in Pasadena, where they spoke with another family who was considering a similar surgery. “We talked with them and told them about our experience to hopefully help make their decision a little easier,” Arman says.

Narek and his family continue to feel thankful to everyone at CHLA who helped them. “From our experience, everything was positive,” Arman explains. “From start to finish, through the testing, the appointments, and the surgery, the doctors were calm and reassuring. We’re so grateful.”

Learn more about the Comprehensive Epilepsy Center at CHLA.

Patient story and photos courtesy CHLA

Refer your friends, neighbors, associates or family members considering making a move: entar.com/refer or call Corey at 213-880-9910

Copyright © This free information provided courtesy L.A. Loft Blog with the information provided by Corey Chambers, Broker, DRE 01889449. We are not associated with the seller, homeowner’s association, or developer. For more information, contact 213-880-9910 or visit LALoftBlog.com, Licensed in California. All information provided is deemed reliable but is not guaranteed and should be independently verified. Properties are subject to prior sale or rental. This is not a solicitation if the buyer or seller is already under contract with another broker.

Corey Chambers Real Estate Newsletter March 2025

The California Home
The California Home

Sunny Skies

All I can say is WOW! 

I am busy helping people find their new homes, thinking of how grateful I am for the value you bring to my real estate business. While looking around out in the world, we see blue skies emerging, and the recent cold days will soon be only a memory.  It looks like Spring has sprung. For many across the country, it’s still cold, grey, and snowy! It very well could hail and snow more in the foothills around LA. But one thing is for sure, this winter season is coming to an end. It does every year without fail.

Just like the weather seasons come and seasons go, so do the seasons of life. I’m sure you have noticed as I have the older I get the faster they move by. These “seasons of life” go by so fast, my hope is that you enjoy each one. Yes, some will be hot and others will be cold highs and lows. The lows we want to move by quickly, the highs we want to stay in forever sometimes.

Corey Chambers, Broker
Corey Chambers, Broker

Please know that my team and I are eager to help anyone you know wanting to make a move. So much so that we are willing to make an offer that your referrals will LOVE – AND – the Kids at Children’s Hospital Los Angeles will love too. 

Your referrals help the kids!

Go Serve Big!!! Investing In Our Southern Californian Kids

If you or a friend are thinking about selling, make sure to choose a real estate company you can trust! A real estate company with experience, proven results, and a give-back philosophy!

AND REMEMBER… Your referrals help the Kids…

We are on a mission to raise $25,000 for CHLA. We do this by donating a portion of our income from homes we sell. As you know, Children’s Hospital of Los Angeles does great work in helping kids fight through and survive serious life-threatening diseases like cancer, Non-Hodgkin’s lymphoma, leukemia and others. They also lead the way in helping kids come back from spinal cord injuries as well as early diagnosis of autism. Last year alone, Children’s helped over 1,000,000 kids right here in Los Angeles. BUT, Children’s relies on sponsorships and donations to provide their elite level of care, and to keep families’ expenses to a minimum. So YOUR REFERRALS REALLY DO HELP THE KIDS…

Who do you know considering buying or selling a home you could refer to my real estate sales team?

Not only will they benefit from our award-winning service, but you can rest assured we are also donating to a very worthy cause.

Go Serve Big!!! Investing in the Children of Los Angeles.

A Real Estate Company that Gives Back!

Children’s Hospital LA leads the way in serving kids one patient at a time.

We are still boldly on a mission to raise $25,000 for Children’s Hospital of Los Angeles, and we are making progress! We do this by donating to them a portion of our income from homes we sell. As you know, CHLA does AMAZING work in helping kids fight through and survive nasty diseases like cancer, Non-Hodgkin’s lymphoma, leukemia, and others. They also lead the way in many other fields.

They can provide this care and keep patient costs to a minimum due to donations and sponsorships. We are proud to support the Children’s Hospital of Los Angeles!

As in the attached story, Children’s Hospital of Los Angeles provides the best pediatric medical care available anywhere in the country. To do that, CHLA needs donations to continue its leading-edge care. We proudly donate a portion of our income from real estate sales to CHLA to help them continue serving the needs of those who most need it in our Los Angeles!

Who do you know considering buying or selling a home you could refer to our real estate sales team? Not only will they benefit from our award-winning real estate service, but a very worthy cause will also benefit as well. To refer anyone considering buying or selling a home just give me a call or pass on my number. 213-880-9910.

Thank you in advance for your referrals!

You and your referrals mean more than ever to my team and me. As we move forward thru this winter, please know we are extremely thankful for you and you being a special part of our business.

Go Serve Big!!! — Corey Chambers

Entar® Real Estate and Investment Technologies!

P.S. I copied and pasted the story below from the CHLA website. It better tells the story of the work they are doing.

MAKING A DIFFERENCE

As a leading charitable hospital, CHLA depends on sponsorships and donations to continue its leading-edge service. We proudly donate a portion of our income from real estate sales to CHLA to help them continue serving the needs of those who most need it in Los Angeles!

A real estate company with experience, proven results, and a give-back philosophy!

Over the years of helping many families sell their homes and/or buy another, we have met some wonderful, loving, caring people. People like you! So your referrals can rest assured that, not only will they get the award-winning service we are known for and the guarantee to back it up, but that a solid portion of the income we receive will go toward helping the kids.

Refer your friends, neighbors, associates or family members considering making a move:

You can go to www.ReferralsHelpKids.com and enter their contact info online or forward the link to someone you know considering a move.

Of course you can always call me direct as well at 213-880-9910


Why I support Childrenʼs Hospital Los Angeles

I grew up right here in the Greater Los Angeles Area, born in Los Angeles County at St. Francis Hospital. I remember when I first heard about a young person close to our family suffering from a nasty disease and getting treated for that at Children’s Hospital Los Angeles. It was then that I began to pay closer attention to the work they do at that hospital. Since then, I have learned that it is a collection of hard-working health care professionals, most making their home right here in the Los Angeles area, all coming together for a common cause. That cause is to help young people overcome unfortunate health issues that life sometimes throws our way. Being a Los Angeles Area California native, I take pride in supporting in a way that I can do the good work these people do at Children’s. My team rallies around our annual goal of raising money and donating portions of our income to help Children’s in their quest to heal young people when they need healing. My team and I are committed to providing outstanding results for buyers and sellers referred to us by our past clients. I have discovered that Children’s Hospital Los Angeles shares a similar commitment to their patients. And since their services survive on sponsorships and donations, we are happy to contribute and proud to support them.

Sincerely,

Corey Chambers

“Meaningful Hope:” Elevidys Gene Therapy Helps Eliot Move With Ease

At 4 years old, Eliot was the first patient at CHLA to receive Elevidys, a groundbreaking new gene therapy for Duchenne muscular dystrophy. The treatment has been a game changer for his health. | by Caitlin Kryl

Elizabeth was stunned.

She’d just watched her 4-year-old son, Eliot, jump fluidly up and down on his pirate ship (read: bed).

This might sound like the typical activity of a preschool-aged kid. For Eliot, though, it was extraordinary.

Throughout his early life, Eliot couldn’t properly jump, despite attempting often. He’d get winded walking down the block and had difficulty climbing stairs. These were the early manifestations of a genetic mutation linked to a severe degenerative neuromuscular disease, Duchenne muscular dystrophy (DMD).

Today, however, Elizabeth saw Eliot’s reality shift:

One month earlier, he had received a groundbreaking gene therapy called Elevidys at Children’s Hospital Los Angeles. After watching Eliot jump, she even called the neurologist who developed Elevidys to check if it were possible the therapy was already working. “I was very conscious of the placebo effect,” she says. “But no, I was seeing the therapy’s effect.”

Deep inside Eliot’s body, Elevidys was helping his muscle cells get healthy. Eliot’s body was restoring itself.

Life-improving Elevidys

Today, Eliot is a rambunctious 5-year-old who walks, runs, jumps, and climbs with relative ease—and who actually has to be reminded to slow down. 

While Eliot may always have DMD, Elevidys is designed to significantly slow neuromuscular degeneration, and in turn, profoundly improve patients’ quality of life.

Elevidys gene therapy works through a one-time IV infusion. Doctors inject a non-disease-causing virus, called a viral vector, into the patient’s body. That vector’s job is to find the person’s muscle cells. Then, the vector delivers a modified gene that makes a shortened version of dystrophin, a critical protein that patients with DMD have trouble producing.

Early days

Eliot was diagnosed with DMD early and unexpectedly. At 5 months old, he spent five days in the hospital with a bout of RSV. Doctors mentioned noticing abnormal liver function values, which aren’t uncommon for viruses but can also indicate a neuromuscular problem.

When Elizabeth took Eliot to his follow-up appointment at CHLA a week later, his pediatrician, Eyal Ben-Isaac, MD, recommended further monitoring. Dr. Ben-Isaac referred Eliot to Leigh Maria Ramos-Platt, MD, Medical Director of CHLA’s Neuromuscular Disorders Center, for evaluation and genetic testing.

The diagnosis

In January 2020, Dr. Ramos-Platt called Elizabeth to confirm their worst nightmare. Eliot had DMD.

“There are no words to describe that feeling. It’s beyond sadness and grief,” Elizabeth reflects. “I remember saying, ‘I just need to know he’s going to be OK,’ and Dr. Ramos-Platt responding, ‘I think he’s going to be OK.’”

The words Dr. Ramos-Platt offered Elizabeth that January day weren’t platitudes. As the two spoke, researchers were trialing game-changing new treatments for DMD. CHLA had already sent children to participate in some of these clinical trials.

“At the time, her words didn’t give me immediate comfort,” says Elizabeth, “but it wasn’t the conversation I think she would be having with patients 10 years ago.”

“Watching the treatment landscape for DMD shift, I was very optimistic,” says Dr. Ramos-Platt. “It was so different from when I was a medical resident.” Until very recently, people with DMD had few treatment options aside from corticosteroids and physical therapy to reduce inflammation and prolong muscle function. Without more effective treatments, the disease could often lead to loss of motor function and ultimately total immobility, difficulty breathing, and shortened life expectancy.

“I remember saying, ‘I just need to know he’s going to be OK,’ and Dr. Ramos-Platt responding, ‘I think he’s going to be OK.’”Elizabeth

The wait

By March 2020, the COVID-19 pandemic had shut down businesses across the globe, slowing progress toward new gene therapies to a crawl. Both Elizabeth and Dr. Ramos-Platt kept close tabs on which trials were progressing, monitoring for any indication from the FDA that a drug would be approved within the next few years.

“We just had to watch and wait. And it was horrible,” Elizabeth says. “Eliot was too young for alternative treatments like steroids. He was so little. We just sat with this terrible information.”

The text

Shortly after Eliot’s fourth birthday, on Jun. 22, 2023, Elizabeth received the text from Dr. Ramos-Platt she’d been dreaming of for three years. Elevidys was officially FDA-approved for 4- and 5-year-olds.

Dr. Ramos-Platt and the Neurological Institute team were ready to spring into action, having conducted several test runs with the drug maker, Sarepta, a month prior. “We’d been building our plan since 2021 based on our experience administering the gene therapy Zolgensmafor spinal muscular atrophy,” Dr. Ramos-Platt recalls. “We didn’t have a concrete process yet for Elevidys—and as the first patient to receive the treatment at CHLA, Eliot’s journey would become our blueprint for patient No. 2, No. 3, and so on.”

Dr. Ramos-Platt introduced Elizabeth to treatment coordinators at Sarepta, and soon began an odyssey of approvals, consents, and back-and-forths with insurance. Eliot’s blood also needed to be tested for any viral antibodies that could interfere with the vector’s ability to deliver the gene therapy.

Once it was confirmed that Eliot was free of any conflicting antibodies, Elizabeth says the family lived their lives “in a bubble,” while staying in constant contact with Dr. Ramos-Platt.

Treatment day: “Like watching someone go to the moon”

To an objective observer, Eliot’s treatment might have looked like any number of routine IV infusions. Except, one day earlier, Eliot’s dose of Elevidys arrived at CHLA with its very own security detail, stored inside a massive, armored, refrigerated box set to exactly minus-76 degrees Fahrenheit.

On Aug. 29, 2023, Eliot, Elizabeth, and Eliot’s father Richard arrived at the CHLA Infusion Center as the pharmacy began thawing and preparing the medicine.

“It was the most extraordinary moment. Still, there were so many things about it that seemed ordinary,” Elizabeth reflects. Eliot was treated in a typical infusion room, sitting on a hospital bed with his stuffed animals like any other child. Inside Eliot’s room, Dr. Ramos-Platt introduced them to Susie Tatoy, RN, who has worked in CHLA’s Infusion Center for more than 40 years. Dr. Ramos-Platt says Tatoy is exactly whom you want by your side on a life-changing treatment day.

“I think almost the entire Neurology team showed up,” Elizabeth recalled. “Then I remember Susie saying, ‘All right, it started.’ And it’s just like … I don’t know … like watching someone go to the moon.”

“It was such an ordinary moment in some ways. And yet what’s happening is they’re transferring a gene to my son to give him something his body can’t produce. And he’s one of, I don’t know, a hundred or so kids who this happened to in the entire world,” says Elizabeth.

Eliot sat there quietly and patiently for the hour-long process and subsequent hours of observation. “It was mind-blowing,” Elizabeth adds. “It moves me every time I go back there in my memory.”

“It was such an ordinary moment in some ways. And yet what’s happening is they’re transferring a gene to my son to give him something his body can’t produce. And he’s one of, I don’t know, a hundred or so kids who this happened to in the entire world.” — Elizabeth

Recovery and milestones

For the next 16 weeks, Eliot and Dr. Ramos-Platt needed to be nearly inseparable. “I become the patient’s best friend,” she often tells families, as patients must undergo weekly tests to ensure their body is responding positively to the therapy. Eliot was a bit shy at first, but eventually, he and Dr. Ramos-Platt bonded over their mutual love of unique animals—especially guinea pigs.

Dr. Ramos-Platt explains that in the first week, patients tend to feel a bit of digestive discomfort, which might persist through the end of the month. She also notes that the care team needs to avoid confusing any early newfound energy with the effects of extra steroids. “But about a month later, they’re doing things that make me say, ‘OK, you didn’t do that before!’”

Before being treated, Eliot scored 22 out of 34 on the North Star Ambulatory Assessment (NSAA), a test used to assess motor function—which indicated that the disease had already begun to impair his movement considerably.

Six weeks after his treatment, he scored a perfect 34 out of 34.

“The physical therapist couldn’t believe her eyes,” Dr. Ramos-Platt recalls. They decided to have Eliot come back another day and conduct the test one more time after he’d stopped taking the extra steroids.

Once again: perfect score.

‘Eliot Day’

Aug. 29, 2024, marked the one-year anniversary of Eliot’s treatment—a day Elizabeth has coined “Eliot Day.”

The family acknowledges Eliot Day not with a cake or a celebration, but with quiet reverence.

“He could tell that things were changing,” says Elizabeth when asked how Eliot processed receiving what she calls “the magic medicine” as a preschooler. “He’s so aware of the seriousness of what happened, and I think it’s probably very overwhelming for someone so young.”

“Internally, as the parent of a child with something so serious, it’s one of those days that is just special,” Elizabeth says. “I think a lot about that day, I talk about it with my husband, and it’s more solemn than celebratory. I don’t mean that negatively—it was just such a profound experience. There is no party or celebration that could capture what gene therapy did for my son.”

I think a lot about that day, I talk about it with my husband, and it’s more solemn than celebratory. I don’t mean that negatively—it was just such a profound experience. There is no party or celebration that could capture what gene therapy did for my son. — Elizabeth

Not fantastical hope, but meaningful hope

Elizabeth encourages other families grappling with a DMD diagnosis to acknowledge that today’s treatment for DMD is “a whole new world and trajectory” than even five years ago.

“Someone once said to me, ‘The best treatment is the one in front of you.’ Do I think that there may be better treatments in 10 years? That is a possibility. But right now, we have a treatment that could be life changing for many of these kids.”

“It’s important to believe the science—to believe there is not fantastical hope, but meaningful hope. If Eliot is any poster child, gene therapy has been a game changer for him.”

Learn more about gene therapy at Children’s Hospital Los Angeles.

Story and photos courtesy Children’s Hospital Los Angeles

Refer your friends, neighbors, associates, or family members considering making a move: www.ReferralsHelpKids.com or call Corey at 213-880-9910

Copyright © This free information provided courtesy L.A. Loft Blog with information provided by Corey Chambers, Broker, DRE 01889449. We are not associated with the seller, homeowner’s association or developer. For more information, contact 213-880-9910 or visit LALoftBlog.com Licensed in California. All information provided is deemed reliable but is not guaranteed and should be independently verified. Properties subject to prior sale or rental. This is not a solicitation if buyer or seller is already under contract with another broker.